Beto was going to spend the night last night but decided not to go since he and I didn't feel well. We decided it must've been something we ate, but we can't take any chances. That's one of the hardest parts about all of this, not being able to see Bela when we just don't feel quite right, because we can't take any chances in passing something on to her since her defenses are so low right now.
Today we went back to church for the first time in almost two months, and that was very encouraging. After church Santi and I went to see her. My aunt Glenda had been there since the morning with her neighbor and lifelong friend, who is also a friend of the family. They came bearing gifts, and we are very thankful. We hung out for a couple of hours and she slept the whole time.
She didn't have a fever, although it had gone up last night again, so we're glad it went back to normal today. Her blood pressure has been high so they have her on medicine for that. They aren't sure why but probably any pain she is having will raise it. She went back on oxygen, just .25 liters, not because her oxygen was too low but because her heart rate was too high, which could also be caused by pain. She needs another transfusion of platelets which will probably happen tomorrow, and will receive Lasix, the diuretic, sometime tonight or tomorrow. They have put her back on milk through her feeding tube, just a very small amount, but it's something. We are very happy that the chemo hasn't "burned" her skin in her diaper area through all of the chemo. She has gone through about 100 diapers a day, however. She is still on 3 antibiotics although they are still not positive that she has an infection. (see previous post). Another blood culture was taken today so we shall see in a few days. I pray the fever won't come back and that it was just caused by the chemo. So now we just wait and see how she does these next few weeks.
When we were there today it took a little bit to calm her down after I changed her diaper since she'd been sleeping very soundly, so as I rocked her in the chair, Santi said, "I have an idea! Let's sing her Twinkle Twinkle Little Star!" and went and grabbed his Tia Glenda's hand and pulled her over next to the chair and led us in song. She still fussed right up till the last note when she calmed down, closed her eyes, put her head on my shoulder, and fell asleep peacefully, and was still like that about 20 minutes later when we left.
Tonight Beto's on duty at the hospital. He went more prepared this time with his laptop and movies.
Today we went back to church for the first time in almost two months, and that was very encouraging. After church Santi and I went to see her. My aunt Glenda had been there since the morning with her neighbor and lifelong friend, who is also a friend of the family. They came bearing gifts, and we are very thankful. We hung out for a couple of hours and she slept the whole time.
She didn't have a fever, although it had gone up last night again, so we're glad it went back to normal today. Her blood pressure has been high so they have her on medicine for that. They aren't sure why but probably any pain she is having will raise it. She went back on oxygen, just .25 liters, not because her oxygen was too low but because her heart rate was too high, which could also be caused by pain. She needs another transfusion of platelets which will probably happen tomorrow, and will receive Lasix, the diuretic, sometime tonight or tomorrow. They have put her back on milk through her feeding tube, just a very small amount, but it's something. We are very happy that the chemo hasn't "burned" her skin in her diaper area through all of the chemo. She has gone through about 100 diapers a day, however. She is still on 3 antibiotics although they are still not positive that she has an infection. (see previous post). Another blood culture was taken today so we shall see in a few days. I pray the fever won't come back and that it was just caused by the chemo. So now we just wait and see how she does these next few weeks.
When we were there today it took a little bit to calm her down after I changed her diaper since she'd been sleeping very soundly, so as I rocked her in the chair, Santi said, "I have an idea! Let's sing her Twinkle Twinkle Little Star!" and went and grabbed his Tia Glenda's hand and pulled her over next to the chair and led us in song. She still fussed right up till the last note when she calmed down, closed her eyes, put her head on my shoulder, and fell asleep peacefully, and was still like that about 20 minutes later when we left.
Tonight Beto's on duty at the hospital. He went more prepared this time with his laptop and movies.
You have so many friends praying for you little Bela!!
ReplyDeleteI hate to hear that Bela is on so much medicine and not feeling well. I pray fervently this all ends ASAP!!